Baby Colby overcomes severe TSW Topical Steroid Withdrawal
There is 'light at the end of the darkest tunnel'. Such an incredible transformation & strong family for getting Colby @tsw.baby through TSW. After over 2 years since his first steroid prescription Colby is finally experiencing life & in all its wonder.“
At 1 month old, suffering was all he ever knew. I remember telling him it wasn’t supposed to be this way. Promising him, one day he would see he was brought into this world to experience more than just pain“ (Sep 29, 2017).
Many although not all who use topical steroids will develop Topical Steroid Withdrawal Syndrome. It's characterized by red, itchy, burning, crusting skin that can appear between treatments or after ceasing topical steroids. Prolonged, repeated use of high-potency steroids particularly on thin epidermal regions often leads to significant adverse effects. These well researched effects should be made more transparent & a holistic approach must be taken. Over time, applying topical steroids results in reduced effectiveness, requiring a high potency steroid to achieve progressively less clearing. The original problem often escalates as it can spread to other areas of the body. The skin also exhibits an increased allergic response to external environmental and chemical substances.
Colby's parents: 'Developmental delays are naturally worrisome, but common with TSW. Fine motor skills were very weak. Crawling and walking were also delayed to approx to 12 and 18 months.
But although physical development suffered, his mind was extremely aware, soaking in whatever it could. With no physical escape for nearly two years, the only outlet was his mind, making him an early speaker.
Today he’s noticeably articulate and artistic with an above average vocabulary.
He’s charming and empathetic. On the flip side he struggles with focus and some social skills, as we were constantly distracting him with whatever we could to prevent scratching.
At 1 month old, suffering was all he ever knew. I remember telling him it wasn’t supposed to be this way. Promising him, one day he would see he was brought into this world to experience more than just pain“ (Sep 29, 2017).
Many although not all who use topical steroids will develop Topical Steroid Withdrawal Syndrome. It's characterized by red, itchy, burning, crusting skin that can appear between treatments or after ceasing topical steroids. Prolonged, repeated use of high-potency steroids particularly on thin epidermal regions often leads to significant adverse effects. These well researched effects should be made more transparent & a holistic approach must be taken. Over time, applying topical steroids results in reduced effectiveness, requiring a high potency steroid to achieve progressively less clearing. The original problem often escalates as it can spread to other areas of the body. The skin also exhibits an increased allergic response to external environmental and chemical substances.
Colby's parents: 'Developmental delays are naturally worrisome, but common with TSW. Fine motor skills were very weak. Crawling and walking were also delayed to approx to 12 and 18 months.
But although physical development suffered, his mind was extremely aware, soaking in whatever it could. With no physical escape for nearly two years, the only outlet was his mind, making him an early speaker.
Today he’s noticeably articulate and artistic with an above average vocabulary.
He’s charming and empathetic. On the flip side he struggles with focus and some social skills, as we were constantly distracting him with whatever we could to prevent scratching.